Author: samarah2

Local researcher champions health equity through innovative patient outreach

Local researcher champions health equity through innovative patient outreach

In the heart of Alabama, Druss Hays is transforming clinical research through creativity and compassion. As a Clinical Research Coordinator for the Forge AHEAD Center FREEDOM Study, Hays employs thoughtful strategies to connect with patients, particularly those often excluded from traditional clinical research. His work highlights the intersection of meticulous planning and a deep commitment to health equity, guided by the leadership of study MPI, Tapan Mehta, Ph.D., and Program Director, Aseel El Zein, Ph.D., RDN in UAB’s Department of Family and Community Medicine.

Breaking Down Barriers

For Hays, recruitment begins with genuine connection. He meticulously reviews patient lists from clinics, while also scanning upcoming primary care appointments to identify potential candidates. Yet, his methods are rooted in more than strategy—they reflect a deep respect for patients’ time and circumstances.

“I find the best results start with calling patients after receiving invite letters,” Hays explained. “The people we reach out to directly meet our criteria to the best of our knowledge. When it comes to recruitment, I have to dedicate as much time as possible to finding the people we need.”

 

Druss Hays

Clinical Research Coordinator
Family and Community Medicine
UAB Heersink School of Medicine 

Hays’ commitment is driven by a deep personal passion rather than a sense of obligation.” “Throughout my life, it was always a priority for my career to have a positive influence on something important. I wouldn’t work as hard as I do now if my labor was just to sell a product.”

Overcoming Access Challenges

Hays understands that access is a significant barrier, particularly for patients in underrepresented or rural communities. Transportation issues often pose major challenges. “Sometimes they don’t have a car at all or can only borrow one at certain times. I’ve had patients report their car was stolen or had ongoing issues with reliability,” he said.

To address these hurdles for participants, Hays implemented practical solutions such as leveraging rideshares like Uber Health to provide rides at no-cost to study visits. For participants, unable to travel to Birmingham, he established partnerships with LabCorp, enabling them to complete necessary tests closer to home.

 

“For people who live in areas too far away for an in-person visit, we use LabCorp,” Hays said. “But even then, some have to cross state lines to get to a location. That’s a tough ask, and it often leads to people opting out.”

Building Trust and Retaining Engagement

While recruitment is critical, Hays also excels in retention—a vital component for long-term studies like FREEDOM. His efforts center on personalized communication, ensuring participants feel valued and supported throughout their involvement.

“I enjoy engaging with participants,” he said. “It’s a great experience when I find someone motivated about their participation. It feels good knowing they’ve gained access to a beneficial resource because of my outreach.”

 

“Continuing in my career, I will always focus on research that benefits marginalized people.”

Hays emphasizes the importance of consistent follow-up. “It can be difficult to contact some participants, but I make notes after every call attempt to prioritize reaching them when they’re available. It’s small things like this that improve retention.”

Looking Ahead

As he continues to build bridges between research and marginalized communities, Hays reflects on the larger impact of his work. “For the future, I’d like to see more financial incentives for participants. Even a small increase in compensation over time could encourage continued participation.”

Hays is also preparing to take his passion for health equity to the next level. He is applying to Ph.D. programs to study social psychology, with plans to explore how systemic barriers shape health outcomes. “Continuing in my career, I will always focus on research that benefits marginalized people,” he said.

A Model for Health Equity

Hays’s approach to patient outreach and retention embodies the mission of the Forge AHEAD Center: dismantling barriers in health research in the Deep South. His innovative strategies, coupled with his empathy and determination, ensure that underrepresented voices are centered in clinical studies.

“I want to have a positive influence on something important,” Hays reiterated. With his track record and vision for the future, it’s clear he is doing just that.

Building healthier futures: Raynor’s work to make research accessible

Building healthier futures: Hollie Raynor’s work to make research accessible

“Translation requires a lot of thought regarding settings, implementers, and patients,” said Hollie Raynor, Ph.D., during the Forge AHEAD December seminar. Raynor, a leader in nutrition and behavior research, works to ensure solutions to childhood obesity don’t remain confined to research papers but reach families and communities in need. She focuses on adapting programs to real-world settings, training the people who deliver them, and designing solutions that work for families in their everyday lives.

At the seminar hosted by the Pennington Biomedical Research Center in Baton Rouge, LA, Raynor discussed the challenges of addressing childhood obesity. “When I started to walk into this space, my interest was thinking about how we can take our family-based intervention—highly intensive at the time—and begin moving it out of specialty care clinics to more primary care settings to enhance access,” she explained. This change, she noted, is essential to helping families—especially those in communities with limited access to care—benefit from programs without the obstacles of specialized healthcare.

Raynor stressed the importance of tailoring interventions to community needs and delivery methods. “As researchers, we need to really describe the site of delivery and the providers involved, so we build a more representative research base to understand how best to impact translation,” she said.

Her work with Federally Qualified Health Centers in Tennessee exemplifies this approach, focusing on scalable models for delivering obesity programs through non-specialist providers, such as primary care physicians and behavioral health consultants.

Breaking Down Barriers

Raynor simplifies evidence-based programs into practical, actionable steps. For example, she has explored ways to reduce contact time in family-based obesity programs while focusing on core behaviors, such as reducing sugary drinks and increasing fruit and vegetable consumption. In a recent study, her team tested a model with just 2.5 hours of contact over six months, alternating in-person and phone sessions to address transportation and accessibility challenges.

These changes come from working closely with community partners and understanding their needs. “It’s so important for us to hear our partners,” Raynor said. “Researchers might say, ‘This is the measure I need,’ but a community partner may say, ‘That’s not feasible.’”

Her work addresses systemic challenges like food insecurity, which affects many families her programs serve. In one project, she modified interventions for food-insecure households by focusing behavior-change goals solely on the child, reducing the burden on parents struggling to make dietary changes for the entire family. “Agility in addressing barriers without sacrificing rigor is key,” she said.


“As researchers, we need to really describe the site of delivery and the providers involved, so we build a more representative research base to understand how best to impact translation.”

 

Turning Knowledge Into Action

Raynor’s work goes beyond program delivery to creating systems that last. “It’s not just about creating new knowledge,” she said. “If your goal is to impact health or translate research, you must avoid creating barriers to implementation.” She highlighted the need to design programs that fit into existing payment models and training systems, allowing healthcare providers to use them without requiring extra resources.

Raynor remains hopeful despite the challenges. “There are many types of research questions,” she said. “What’s important is applying a high degree of rigor to address those questions while considering equity and real-world application.” Her work exemplifies a commitment to practical, impactful research that helps families access care and addresses health disparities.

At the end of the seminar, Raynor described her vision of a future where all families have the tools and support that they need to live healthier lives. “We need to ensure the research base we’re building is representative and actionable,” she said, calling researchers, practitioners, and communities to collaborate on turning proven strategies into lasting solutions.

By focusing on translation, Raynor is working to reduce childhood obesity and ensure all families have the opportunity for healthier lives.

For more on upcoming Forge AHEAD events and resources, visit our website. You can also watch the seminar recording here.

Embracing values-based self-care during the holidays

Embracing values-based self-care during the holidays

As the holiday season picks up, it’s easy to get caught in the hustle and bustle. In the November 13 webinar, “Values-based Self Care for the Holiday Season and Beyond,” Kaylee Crockett, Ph.D., Forge AHEAD scholar and assistant professor of Family and Community Medicine, shared invaluable insights on aligning self-care practices with personal values.

Key Takeaways from Dr. Crockett

Crockett emphasized that self-care goes beyond just relieving daily stresses. “Self-care includes all the things we do to live well, support health and well-being, and manage stress. We must consider self-care not only as an escape from the things that ail us, but as a resource to connect to what matters most to us (i.e., our values). Values include our deepest desires for how we want to treat ourselves, others, and the world around us. Unlike goals, values are things that we achieve, but they give us direction for our actions.”

Here are some of her key tips for incorporating values into your self-care routine:

Kaylee Crockett, Ph.D.

Forge AHEAD Center Scholar, Assistant Professor, Family and Community Medicine, UAB Heersink School of Medicine

  1. Identify Your Values: Reflect on the type of person you want to be. Consider qualities you want to foster and how you wish to be perceived by others. Write down 4-5 words that resonate with you and describe what they mean to you.
  2. Make Values Identification Social: Engage in discussions with family and friends about shared values. Support each other in staying accountable to what matters most.
  3. Prioritize Values in Self-Care Activities:Use your values as a guide to cultivate activities for self-care.For more exercises on identifying your values, check out this resource here.

Moving Forward with Values-Based Self Care

By aligning your self-care practices with your values, you can enhance your well-being during the holiday season and beyond. Remember, self-care is not just about what you do to relax but about connecting with your deepest desires and living in a way that reflects them.

Let’s continue to prioritize our well-being by making values-based self-care a part of our daily lives.

For more about Crockett’s Forge AHEAD research, see this page.

 

Forge AHEAD Center welcomes new staff dedicated to advancing health equity

Forge AHEAD Center welcomes new staff dedicated to advancing health equity

Meet Carol Agomo, Ph.D., MBA, MPH, program director in the Division of General Internal Medicine and Population Science at the University of Alabama at Birmingham (UAB) and director for community outreach and engagement in Alabama for Forge AHEAD.

With more than 15 years of experience in higher education and community engagement, Carol specializes in public health, health literacy, health equity, and reducing health disparities. She describes herself as a “community-engaged scholar-practitioner” and has developed numerous professional initiatives that strengthen partnerships between communities and academic institutions nationwide. Her research offers deep insights into the experiences of Community Health Workers in the Deep South, enriching her understanding of how local health infrastructure impacts outcomes for under-resourced communities.

Carol’s role at Forge AHEAD enables her to “bridge the gap between research and practice” in Alabama. She said, “I look forward to collaborating with community members and researchers to advance health equity knowledge and action.” Recognizing the urgent need for interventions that are culturally relevant, context-sensitive, and sustainable, Carol is committed to co-creating solutions for conditions like diabetes, obesity, and hypertension, which are prevalent in the Deep South. Her dedication to this work stems from her belief in education’s power to empower both individuals and communities—a foundation she sees as essential for lasting change.

Personally, Carol’s move from Chicago to the Deep South has fostered a deep connection with the region. She is raising her family here and feels driven to contribute to a healthier future for her community. Outside of work, Carol, a self-described “foodie,” enjoys exploring local restaurants and experimenting with new recipes at home. She balances her culinary interests with an active lifestyle, often participating in 5K runs, outdoor walks, and other fitness activities that help her “recharge and find fulfillment” in both her personal and professional commitments.

Visitors to Carol’s office might catch her “theme song of the day” playing softly in the background—a small reflection of her passion for music and its role in her life.

Carol’s enthusiasm, commitment to community, and holistic approach to health equity make her an invaluable addition to the Forge AHEAD team.

 

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Carol Agomo, Ph.D., MBA, MPH

Director for Community Outreach and Engagement in Alabama, Forge AHEAD Center 

 

Jared Ball, MPH, brings a strong background in public health and extensive experience in population health to his role as Program Evaluator for Forge AHEAD.

Jared earned both his BS in public health and MPH in health policy from UAB. His professional journey has included roles in Medicaid population health, where he supported individuals with chronic conditions, such as diabetes and hypertension, through transitional care services. Additionally, he served as a patient navigator in Birmingham’s public health community and led education and training efforts for the UAB Center for Palliative and Supportive Care. These experiences, along with his commitment to health equity, brought him to Forge AHEAD, where he is driven to make a positive impact.

In his current role, Jared sees an opportunity to “capture the work that has already been accomplished by Forge AHEAD and its members, while also exploring new directions for growth.” His work in program evaluation will be crucial for assessing Forge AHEAD’s progress, responding to emerging community needs, and strengthening the Center’s impact in addressing health disparities across the Deep South.

Jared’s dedication to public health is deeply personal. Reflecting on his father’s kidney transplant, he shares, “The treatment my dad received during his transplant when I was very young” profoundly influenced his motivation to contribute to health in the region. Growing up aware of the barriers facing many communities in the Deep South, Jared brings a deeply informed, empathetic perspective to his work with Forge AHEAD.

Outside of work, Jared is a dedicated family man with two children—a 4-year-old son and a 2-month-old daughter. He enjoys staying active through running, hiking, and building Lego sets, a hobby he hopes to share with his son. Jared also finds joy in exploring new places, watching sports, and spending quality time with family and friends.

Jared’s combination of professional expertise, personal connection to the region, and commitment to continuous improvement makes him a key asset to the Forge AHEAD team.

 

Xie headshot

Jared Ball, MPH

Program Evaluator, Forge AHEAD Center 

 

Rikki Tanner, Ph.D., is an epidemiologist specializing in cardiometabolic diseases and health disparities, now serving as a scientific writer with the Forge AHEAD Center.

With a strong foundation in public health research and a passion for reducing health disparities, Rikki is committed to advancing health equity through community collaboration and engagement. She is enthusiastic about her role in communicating Forge AHEAD’s research to the broader scientific community.

Growing up in the Deep South with parents who worked as a paramedic and a nurse, Rikki became keenly aware of pressing public health issues, including mental health stigma, racial disparities in healthcare, and limited access to services. Reflecting on her early experiences, she recalls a transformative college course, History of American Medicine, which deepened her understanding of the advancements in medical science and the persistent challenges marginalized communities face in accessing these benefits. “In parts of the Deep South and marginalized communities, we still have a long way to go to equitably distribute those gains,” she said. This awareness drives her commitment to making Forge AHEAD’s research impactful and accessible.

Outside of work, Rikki enjoys exploring historical fiction, practicing fiber crafts like crochet and embroidery, and watching British panel shows. An avid pub trivia enthusiast, she’s always up for testing her knowledge in a friendly challenge.

Rikki’s dedication to health equity, her background in public health, and her passion for storytelling make her an invaluable addition to the Forge AHEAD team. We’re excited to see how her unique perspective and skills will amplify our mission for a healthier, more equitable South.

 

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Rikki Tanner, Ph.D.

Scientific Writer, Forge AHEAD Center 

 

Locher emphasizes inclusive language in scientific research

Locher emphasizes inclusive language in scientific research

“Language is the primary way we convey meaning and culture,” said Julie Locher, Ph.D., professor emerita at the University of Alabama at Birmingham, as she opened the Forge AHEAD seminar on the power of language in scientific communication in November at the University of Mississippi Medical Center.

Locher emphasized the responsibility of researchers to communicate with accuracy and respect, highlighting how word choice in research can shape relationships with communities and influence research outcomes. “When we use language that resonates and respects,” she added, “we open doors to trust and engagement that can transform the impact of our work.”

The seminar “Words Matter: Effective and Appropriate Scientific Communication” focused on practical strategies for using inclusive and respectful terminology, particularly in studies involving diverse communities.

A leading sociologist in health communication, Locher urged the audience to avoid outdated, problematic, or offensive terms, offering guidance on fostering cultural humility throughout the research process. “I approach every interaction with the assumption that no one intends to do harm,” Locher remarked, “but by becoming aware, we can choose words that respect and uplift others.”

Key takeaways included:

  • Person-first language: Locher advocated for using language that acknowledges people as individuals rather than defining them by their health conditions. For instance, instead of “diabetics,” researchers should refer to “people living with diabetes.” This shift reduces stigma and emphasizes the person over the condition.
  • Cultural humility: Locher described cultural humility as a “a lifelong process of self-reflection and self-critique”, adding that it helps mitigate bias. She encouraged researchers to reflect on their beliefs and assumptions, which can inadvertently influence their views of study populations. “Cultural humility isn’t something we check off a list; it’s a lifelong journey of understanding our own biases and assumptions so that we can meet others where they are.”

“Language is the primary way we convey meaning and culture.”

Locher emphasized the vital role of language in scientific research, stressing that using inclusive and respectful terminology fosters trust, strengthens community engagement, and ultimately enhances the impact of research.

  • Considerate demographic terminology: Locher emphasized the importance of using precise terms when describing diverse populations, noting, “The term ‘minority’ often generalizes experiences and can obscure individual identities. We should avoid broad terms like ‘minorities’ and instead be specific, referring directly to the racial or ethnic groups relevant to our studies.” This approach, she explained, “preserves distinctions and respects the diversity within each community.”
  • Inclusive descriptions for disability and socioeconomic status: In discussing language around disabilities and socioeconomic status, Locher stated, “Using phrases like ‘wheelchair-bound’ or ‘the homeless’ can unintentionally define individuals by their challenges rather than their humanity.” She recommended alternatives, such as “individuals who use a wheelchair” and “people without housing,” which emphasize personhood and avoid stigmatization. She reminded the audience, “Our choice of words should uplift and respect, not reduce people to their circumstances or needs.”

 

What is "person-first language"?

“Person-first language” emphasizes referring to individuals as people first, rather than defining them by their health conditions. By using phrases like “people living with diabetes” instead of “diabetics,” researchers reduce stigma and focus on the person rather than the condition.

 

Locher concluded her presentation by encouraging scientists to see language as an evolving tool. “Words that are appropriate today may not be tomorrow,” she said, advocating for continuous learning and adaptation. She also shared resources for scientists wanting to stay updated on recommended language, including guidance from the National Institutes of Health and major health organizations.

The Forge AHEAD Center thanks Dr. Locher for thoughtfully equipping researchers with tools to communicate in ways that respect and accurately represent all individuals. Her seminar reinforces the importance of language in building trust, improving engagement, and advancing health equity across diverse populations.

For more on upcoming Forge AHEAD events and resources, visit our website. You can also watch the seminar recording here.

Schneider Worthington receives recognition for maternal nutrition research

Schneider Worthington receives recognition for maternal nutrition research

Camille Schneider Worthington, Ph.D., a scholar at the Forge AHEAD Center, is leading groundbreaking research on maternal nutrition. Her project, “Use of Home-Delivered Meals to Manage Cardiometabolic Health during Pregnancy among Predominantly Black, Low-Income Women in Alabama,” aims to improve pregnancy outcomes by providing healthy meals to Medicaid-eligible women.

Schneider Worthington emphasizes the critical role of nutrition during pregnancy, noting that poor dietary choices can lead to serious health risks for both mothers and babies. With alarming statistics showing that 70% of pregnant women exceed recommended intakes of added sugars and sodium, her research focuses on innovative solutions to ensure access to nutritious foods.

By delivering ten free healthy meals each week to participating mothers, Schneider Worthington hopes to demonstrate that improved nutrition can lead to better maternal and infant health outcomes. “Healthy meal delivery can support healthier pregnancies, which supports healthier babies and ultimately healthier communities,” she states.

Read the full story here. 

Camille Schneider- Worthington, Ph.D.

Assistant professor, Division of General Internal Medicine and Population Science, UAB Marnix E. Heersink School of Medicine

Learn more about Worthington. 

Our Scholars’ stories: Caldwell bridges the gap of genetics and nutrition to enhance health outcomes among African American communities in Baton Rouge

Our Scholars’ stories: Caldwell bridges the gap of genetics and nutrition to enhance health outcomes among African American communities in Baton Rouge

Disparities in health outcomes for African American adults involve both biological and social health determinants. Jennifer Caldwell, Ph.D., a researcher at Pennington Biomedical Research Center, is exploring the combined influence of a biological determinant (a person’s genes), and a social health determinant (food insecurity) to understand the impact on African American adults’ health outcomes in Baton Rouge, Louisiana. Genetics are known to play a role in 9 of 10 leading causes of death in the U.S. including heart disease, stroke, and diabetes. North Baton Rouge is a predominantly made up of African American households where 20-30% of households are food insecure compared to only 8-10% of households in South Baton Rouge.

Inspired by the North Baton Rouge community, Caldwell is researching how food insecurity affects the body’s ability to heal. This community, which lacks grocery stores and fresh produce and relies solely on convenience stores, is classified as a “food desert.”

Additionally, she aims to start a conversation with African American communities in this area about how genes influence their health.

“I wanted an intervention that would close that knowledge gap,” she says. “We titled the project Linking GAINS; it aims to combine the analyses of genetics and nutrition to enhance health behaviors among participants undergoing a behavioral intervention.”

 Linking GAINS focuses on community engagement to share information on how genetics and health behaviors impact a person’s health. Caldwell’s goal is for residents in the African American communities in North Baton Rouge to understand their genetic makeup and use that knowledge to make informed health decisions. By bridging the gap between genetics and nutrition, Caldwell hopes to foster healthier behaviors and improve overall health outcomes in these underserved areas.

Jennifer Caldwell, PhD, MPH

Assistant Professor, Public Health Genomics and Health Equity Laboratory, Pennington Biomedical Research Center

Learn more about Caldwell.

“I wanted an intervention that would close that knowledge gap,” she says. “We titled the project Linking GAINS; it aims to combine the analyses of genetics and nutrition to enhance health behaviors among participants undergoing a behavioral intervention.”

 A history of inequity in Louisiana

Longstanding geographical segregation issues contribute to health disparities in Louisiana. “This initiative is crucial due to the historical segregation within Baton Rouge, Louisiana, where disparities exist between the south and north sides of the city,” Caldwell explains.

“In the past, African American communities were primarily located near industrial plants or railroad tracks on the north side. Currently, the southern side is characterized by institutions like Louisiana State University (LSU), situated close to the medical corridor and areas with better access to fresh produce and economic development.”

Did you know?

A food desert is a community with limited resources and fresh produce

 As a result, there remains a significant social and economic gap in the city that is linked to racial issues from Louisiana’s historical background and antebellum past, Caldwell says.

The disparity lies in the city’s economic systems,social systems and structures, and transportation is a significant contributing factor to these discrepancies.

 “One critical aspect of the disparity between residents living on the north and south sides of Baton Rouge, particularly in the area near Louisiana State University, is the issue of food deserts and its impact on health equity, compounded by transportation challenges.”

As a result, there remains a significant social and economic gap in the city that is linked to racial issues from Louisiana’s historical background and antebellum past, Caldwell says.

“One critical aspect of the disparity between residents living on the north and south sides of Baton Rouge, particularly in the area near Louisiana State University, is the issue of food deserts and its impact on health equity, compounded by transportation challenges.”

As a result, there remains a significant social and economic gap in the city that is linked to racial issues from Louisiana’s historical background and antebellum past, Caldwell says.

The disparity lies in the city’s economic systems,social systems and structures, and transportation is a significant contributing factor to these discrepancies.

“One critical aspect of the disparity between residents living on the north and south sides of Baton Rouge, particularly in the area near Louisiana State University, is the issue of food deserts and its impact on health equity, compounded by transportation challenges.”

Caldwell’s ‘why’

Caldwell says she is very motivated to tailor her program to the community. “As a young professor, I am very interested in genetics, and it has been one of my top priorities. Engagement and health literacy is another one of my top priorities.”

“I realized if I am going to build this lab, I have to build trust with the community and empower them to build their health literacy. We wanted to build a project that could meet the need of underdeveloped areas in Baton Rouge. North has no actual grocery stores or medical corridors.”

Engaging African American community members

To build trust and meet the community’s needs, Caldwell and her team are focused on maximizing recruitment efforts and engaging a diverse range of often marginalized participants.

“Our collaboration includes the Southern University Agriculture and Extension Center alongside various community outreach partners, organizations, and local churches. By situating the project in North Baton Rouge, we aim to eliminate transportation barriers and ensure accessibility for the community members.”

Keeping it local shows Caldwell’s determination to build a program in partnership with the community, making it easy and welcoming for people to join. “We have made sure to incorporate things that are culturally centered, like cooking classes,” she says, “Louisiana has such a rich culture and food culture.”

 

The study: Enhance health behaviors through community

Throughout the Linking GAINS study, participants will learn the impact that genetic factors that contribute to developing chronic diseases.

They will be able to understand and effectively communicate their genetic results to their primary care providers. Additionally, participants will receive guidance on adopting healthier lifestyles and modifying behaviors to improve overall well-being.

“We are establishing clinic groups within the community,” Caldwell says, “And meetings are to be held at a local church.” It is important to Caldwell that participants feel safe and that trust is built in a trustworthy space during the study.

Did you know?

North Baton Rouge faces more health challenges than the south due to historical segregation.

Participant-centered approach

Linking GAINS intervention focuses on the participants, giving them choices and flexibility to keep them engaged. “Participants will benefit from a comprehensive 14-week behavioral intervention program, coupled with the groundbreaking inclusion of genetic testing,” Caldwell explains.

“This unique initiative offers participants the opportunity to receive their genetic results and engage in one-on-one sessions with a genetic counselor for a detailed review of these findings.”

Early on, Caldwell says she spoke with a therapist about using interventions in the project. The therapist gave great advice on group counseling sessions, especially about myths and stress management. Based on the therapist’s advice, Caldwell says they have included group counseling sessions that will cover these topics.

Group sessions will help participants feel engaged with their peers and keep them from feeling alone or singled out.
The groups will discuss health disparities, nutrition, and healthy cooking, as well as what foods to buy and how to cook fresh produce. Sessions on heart health and similar topics will also be held. The interventions focus on lifestyle and behavior changes and are tailored to the community’s needs.

Caldwell explains that community engagement is a big challenge in clinical research with African American communities. By making this project community-based and a group effort, they hope to get people involved and keep them engaged.
Interventions include health behavior programs and weekly sessions, not just on weekends. There will also be weekly physical activity programs.

Making it easy to participate

Along with situating the study in the heart of the community, Caldwell wants to ensure participants have time to join. “The project is designed to take place on weekdays after 5:30 p.m., providing flexibility for participants so they do not have to worry about leaving work early.”

To that end, Caldwell wants to ensure participants feel valued for their time. “I understand that committing to research is challenging. For this reason, we compensate participants for their time, whether they need to leave work or make other adjustments. One of the key aspects of this project is its timing. We aim to accommodate participants’ schedules to ensure they do not have to take time off work to engage in research.”

Participation will involve individuals from two different communities. “This demographic is crucial for us to understand the impact of our interventions on a diverse group. We have collaborated with non-profits that possess valuable insights about the communities we are studying. Their contributions have been instrumental in shaping the project.”

Caldwell’s project, Linking GAINS, addresses crucial health disparities at the intersection of genetics and nutrition in North Baton Rouge. By focusing on empowering African American communities to learn about the combined impact of how genetics and food insecurity influences health outcomes, this intervention aims to empower community members to make informed health decisions and improve long-term health outcomes. By focusing on community engagement and culturally relevant intervention, Caldwell’s work exemplifies a holistic approach to advancing health equity and can serve as a model for similar efforts nationwide.

Our scholars’ stories: Andrabi seeks to fill a gap in care for stroke survivors in Alabama’s Black Belt

Our scholars’ stories: Andrabi seeks to fill a gap in care for stroke survivors in Alabama’s Black Belt

African American communities have a higher prevalence of both hypertension and stroke than any other ethnicity. Alabama is among one of 11 states makes up part of the region known as the Stroke Belt where death from stroke is from 2 to 4 times greater than other states.

“Stroke is especially prominent among African American adults living in the Black Belt of rural Alabama,” says Mudasir Andrabi, Ph.D., Forge AHEAD Center scholar.

Andrabi, who is researching the needs and preferences of individuals living in rural Alabama on their post-stroke life management and blood pressure management.

A gap in post-stroke care

Data shows that seventy percent of stroke survivors are discharged from health care facilities, out of which, 40% are released without any community-based services.

“These rates worsen in rural areas due to the socio-demographics of persons living in these areas, including unavailability of services, unaffordable care, lack of transportation, and low socioeconomic status,” says Andrabi, who is an assistant professor at the University of Alabama’s Capstone College of Nursing.

 “Lack of health services makes post-stroke self-management for these individuals more challenging, leading to hypertension and recurrence of stroke.”

Mudasir Andrabi, Ph.D.

Assistant Professor, Capstone College of Nursing, University of Alabama

Learn more about Andrabi. 

“Stroke is especially prominent among African American adults living in the Black Belt of rural Alabama.”

 Andrabi’s research study aims to address the critical gaps in managing stroke-related challenges among African American individuals aged 50 and above who have a documented diagnosis of chronic stroke and high blood pressure condition with mild to moderate disability. Approximately 15% to 20% of individuals will experience a stroke recurrence. According to a recent study, risk of stroke recurrence at 3 years is higher for Black individuals (17.4%) compared with non-Black individuals (14.7%) in the U.S.

With the right tools, self-management interventions can prevent 80% of stroke recurrences.

Andrabi’s why

During her previous work with African American individuals living in rural counties of Alabama, Andrabi says the community key leaders and participants “anecdotally mentioned a lack of services for individuals who have stroke and high blood pressure.”

Did you know?

African American communities have a higher prevalence of both hypertension and stroke than any other ethnicity.

They were reported to have poor management for high blood pressure and engaged in limited preventive behaviors like physical activity and adherence to the treatment.

“Moreover, there is minimal to no rehabilitation services available to these individuals’ post-stroke due to unaffordable co-pays and lack of insurance.”

Due to scarce resources, these individuals have poorer outcomes, including poor body balance, avoidance of physical activity due to fear of falling, and lack of knowledge and skills for alternate other suitable physical activities. Andrabi shared that they typically become dependent on family for their activities of daily living. They also seem to have poor control over their blood pressure in general. 

 “Since high blood pressure is a major risk factor for stroke, these individuals often end up having a recurrence of stroke. Therefore, it was found to be a priority to help them manage their high blood pressure and post-stroke life as much as possible.”

Andrabi says she wants to empower individuals post-stroke to engage in health behaviors to reduce likelihood of stroke recurrence including reducing sedentary activities, appropriate exercise and medication adherence.

Interventions that prevent stroke recurrence and save lives

Interventions help stroke patients manage and improve their high blood pressure symptoms, physical and emotional stress, taking medication consistently, activities of daily living, and quality of life.

However, intervention strategies are not widely tested among older African American stroke survivors for the management of their post-stroke life and their high blood pressure management.

“We aim to develop a need-based intervention that will be tailored to the social determinants of health and culture of the African American aging populations of rural Alabama,” explains Andrabi.

The group plans to utilize basic technology and other resources available in Alabama’s rural counties. The intervention will be minimally expensive and can be delivered using a minimum health workforce.

Creating a program unique to the community

“Our study involves the community’s key members throughout the entire study including the needs assessment, intervention development, and delivery of intervention.”

To Andrabi’s knowledge, this study is a unique and innovative culturally tailored intervention that would be accessible and affordable for these underserved populations in Alabama at high risk for stroke recurrence.

Developing a cost-effective and accessible self-management program will aim to overcome barriers to health care accessibility and increase equity in the distribution of health care services within these geographically disadvantaged areas.

The overall study focuses on improving stroke survivors to manage their high blood pressure and challenges related to their post-stroke life to improve their health outcomes and quality of life.

Andrabi’s post-stroke self-management program

The post-stroke self-management program includes teaching important information via teleconferences, creating a unique exercise plan based on the severity of the stroke survivor’s disability, sending reminders through texts or calls depending on participant preference, and problem solve to address barriers that may prevent them from engaging in preventive health behaviors.

 

Andrabi says the main research question is to assess the needs of stroke survivors and develop the best intervention to address those needs. Components will be tailored to the specific needs and preferences of participants, such as:

  • Delivery of education to build learning related to management of high blood pressure and post-stroke life
  • Accessibility of the program in participants’ homes to overcome their lack of transportation and long distance from the health care facilities
  • Simplicity and the social relevance of the educational content
  • Reminders for educational sessions for their ease of understanding, especially among elderly individuals

 

Did you know?

Alabama is part of the Stroke Belt, where death is 2-4 times higher than other states.

  • Use of existing resources in counties, such as existing social groups, existing teleconference system, local produce, community halls, or church halls for indoor physical activity during unfavorable weather

All these components focus on overcoming the barriers of lack of insurance and unaffordability of care.

Testing a post-stroke self-management program

Ultimately, the goal of this project is to assess the feasibility, acceptability, and effectiveness of a newly developed intervention for African American stroke survivors in rural Alabama.
In addition, the study involves the community members in every phase, building their capacity to run the program independently and enabling them to control their health.

Forge AHEAD Center Announces Fourth Cohort of Scholars Focused on HIV

Forge AHEAD Center Announces Fourth Cohort of Scholars Focused on HIV

The Forge AHEAD Center (FAC) is delighted to introduce the recipients of its pilot funding for the fourth cohort, with a specific focus on HIV prevention and management in the Deep South.

These four early-stage investigators were selected for their groundbreaking research aimed at addressing critical public health issues related to HIV.

Their work aligns perfectly with the Forge AHEAD Center’s mission of reducing health disparities and fostering healthier communities through innovative research endeavors.

Introducing the Fourth Cohort Scholars

We are honored to recognize the following outstanding researchers, whose projects all center around improving health outcomes for people living with HIV:

Kristen Allen-Watts, Ph.D. headshot

Kristen Allen-Watts, Ph.D.
Assistant professor at the University of Alabama at Birmingham

Project: “Peer MODELS: (Managing a Community-based HIV, Diabetes, and pain intervention that Encourages healthy Living and provides Support), for PWH and T2D in the setting of chronic pain”

Headshot of Dr. Donald Gerke

Donny Gerke, Ph.D.
Assistant professor at the University of Alabama at Birmingham

Project: “Facilitated Stable Housing as a Strategy for Uptake and Sustainment of Evidence-Based HIV and Cardiometabolic Medicine in People with HIV”

Headshot of Gravett

Matt Gravett, M.D.
Assistant professor at the University of Alabama at Birmingham

Project: “Laying the Foundation for PrEP in Urgent Care Settings”

Xie headshot

Rongbing Xie, DrPH
Assistant professor at the University of Alabama at Birmingham

Project: “Enhancing Recruitment and Retention for Black Females with HIV: Identifying Barriers, Facilitators, and the Role of Social Determinants for the Willingness to Participate in the HEALTH Study”

Empowering Scholarly Success

The Forge AHEAD Center is committed to fostering a supportive environment for our scholars. Each recipient will receive both strategic guidance and mentorship throughout their research journey. This comprehensive approach empowers them to translate their visions into impactful research that holds the potential to make a significant contribution to reducing HIV-related health disparities across the Deep South.

Investing in the Future of HIV/AIDS Health

By funding these groundbreaking projects, the Forge AHEAD Center demonstrates its unwavering dedication to advancing health equity and improving the well-being of individuals living with HIV across the South. We are confident that the work of our fourth cohort will have a lasting positive impact on our communities.

Stay Connected!

For more details about the scholars and their research endeavors, please visit this page. We are actively seeking talented investigators for upcoming funding cycles. Early-stage investigators interested in applying for pilot awards are encouraged to visit our website for application guidelines and deadlines. The RFA for Cohort 5 is currently open, with Letters of Intent due on June 25, 2024.

Katie Ellison’s Journey: Triumph, Mentorship, and the George Bray Obesity Research Award

Katie Ellison’s Journey: Triumph, Mentorship, and the George Bray Obesity Research Award

Katie M. Ellison, M.S., a doctoral student at the University of Alabama at Birmingham (UAB), is on a remarkable journey that blends personal struggles with professional triumphs. This journey will soon be celebrated on the grand stage of the Nutrition 2024 conference in Chicago, IL, where she will receive the prestigious George Bray Obesity Research Student Award.

This award not only recognizes her groundbreaking work but also underscores the vital mentorship of FAC Core Project Principal Investigator Drew Sayer, Ph.D., whose guidance has been essential in her journey.

The Mentor’s Influence

Ellison speaks about the profound impact Sayer has had on her career. “Dr. Sayer has significantly shaped my approach to research and my professional growth,” she shared. “One of the most valuable lessons I’ve learned from him is the importance of perseverance and curiosity in scientific research.” Sayer, who found his passion for public health early on, said, “Even during my undergraduate years, I was more drawn to the public health implications of healthy eating and physical activity than just sports performance. Obesity research felt like a natural fit.”

Ellison’s enthusiasm and commitment have been evident from the start. “Katie has that ‘it factor’ that’s hard to describe but easy to recognize. Her enthusiasm for this work is infectious, and her genuine desire to improve lives brings a unique perspective,” Sayer noted.

Katie Ellison (right) with her mentor Drew Sayer, Ph.D. (second from right), and colleagues at a research presentation.

A Personal Motivation

Ellison’s passion for obesity research is deeply personal, stemming from her own battles with weight. “I was inspired to pursue a career in nutrition sciences and obesity research because of my personal journey with weight loss and the challenges I faced,” she explained. “I have seen firsthand the profound impact that obesity can have on individuals and their families. This experience has fueled my determination to help others overcome similar struggles.”

Did You Know?

Dr. George Bray was the founding Executive Director of the Pennington Biomedical Research Center, a Forge AHEAD partner institution, and is internationally recognized for his research in obesity. The George Bray Obesity Research Student Award, endowed by Dr. Bray and his wife Marilyn, continues to honor his legacy by recognizing outstanding student research in obesity.

Award and Research Focus

Receiving the George Bray Obesity Research Student Award is a pivotal milestone for Ellison. “I was incredibly honored and excited to learn that I was receiving the George Bray Obesity Research Student Award. I believe my research stood out because it addresses a critical gap in understanding the behavioral aspects of obesity,” Ellison said.

Her work aims to uncover strategies that can improve health outcomes for individuals struggling with obesity. “My research aims to understand how specific behavioral strategies can improve weight loss outcomes and overall health in individuals with obesity. My own journey taught me the importance of sustainable lifestyle changes, and I hope this work will contribute to more effective treatment protocols for obesity,” she elaborated. Her work is not just about data; it’s about changing lives.

 

Sayer highlighted the significance of this achievement, saying, “George Bray is a pioneer in obesity research and receiving an award bearing his name is a tremendous accomplishment for Katie and a testament to the quality of her work. There is a lot of interest in the concept of ‘precision nutrition’ in obesity research treatment. I hope that this award signals a growing interest and emphasis on innovative experimental designs that can bridge the translational gap between traditional clinical research and the delivery of adaptive and personalized care to people living with obesity.”

Future Aspirations

Looking ahead, Ellison has clear goals. “Following this award, my aspirations are to further explore innovative behavioral interventions that can be integrated into clinical practice. I plan to build on my current research to develop comprehensive treatment strategies that address the multifaceted nature of obesity.” Her vision is one of a healthier future for all, where effective treatment strategies can lead to lasting health improvements.

Ellison’s recognition with the George Bray Obesity Research Student Award is a testament to her perseverance, the mentorship she received, and her dedication to making a difference. Her work, guided by Sayer, exemplifies the spirit of collaboration and innovation at Forge AHEAD. As Ellison continues her journey, her contributions are set to shape the future of obesity treatment, offering hope and better health outcomes.

Katie Ellison’s story is one of courage, determination, and the transformative power of mentorship. It highlights the importance of resilience, curiosity, and the incredible impact of one person’s dedication.

“Dr. Sayer has significantly influenced my approach to research and my professional development. One of the most valuable lessons I’ve learned from him is the importance of perseverance and curiosity in scientific research.” – Katie Ellison