Category: Community Engagement

Our Scholars’ stories: Karlson empowers next generation of youth who have Sickle Cell Disease

Cynthia Karlson, Ph.D., vice chair of Pediatric Research at University of Mississippi Medical Center (UMMC), is leading a study to promote wellness through exercise and physical activity for adolescents with Sickle Cell Disease.

Sickle Cell Disease (SCD) is the most common genetic condition in the world, affecting over 100,000 individuals, predominately Black/African American individuals, in the United States. It is a chronic, disabling, and life-threatening condition.

“Sickle Cell FIT: Increasing Physical Activity in Youth with Sickle Cell Disease” aims to examine the feasibility and safety of strength-training exercise in youth with sickle cell disease, says Karlson. The study works to prevent future cardiometabolic disease correlated with obesity.

“We also aim to gather information from the sickle cell community regarding barriers to physical activity.” Those barriers may include social determinants of health, such as poverty and access to education and health care.

Combatting a concerning trend

Nearly 25% of children and adolescents with SCD are overweight or obese. The increasing rate of obesity in youth with SCD deepens concerns for future cardiovascular disease, pain, metabolic syndrome, and Type II Diabetes.

Karlson explains that the project works directly with adolescents and young adults with sickle cell disease to conduct an exercise trial and monthly wellness group.

The Sickle Cell FIT program includes two arms: Warrior FIT and Community Outreach.

The Warrior FIT 8-week intervention is based on research that suggests moderate-intensity aerobic exercise and low-strain muscle training are most effective for individuals with SCD. The study enrolls 40 patients 12-21 years old into the 8-week pilot feasibility and effectiveness intervention program. Warrior FIT teaches safe exercises that youth can do at home through a combination of in-person and telehealth visits.

Regarding the Community Outreach program, Sickle Cell FIT partners with the UMMC Pediatric Sickle Cell Program and is working to create educational materials on the risk of obesity and benefits of safe exercise.

Additionally, Karlson says, “We will work with community members that work with individuals with sickle cell disease. Community groups include parents of youth with sickle cell, the Mississippi Sickle Cell Foundation Board, the Mississippi State Department of Health, and UMMC Center for Integrative Health.”

Early insight, lifelong impact

When asked how this project impacts the community, she says, “We hope to demonstrate that strength-training is safe, effective, and beneficial for youth with sickle cell disease. We also hope to gain important knowledge regarding the barriers to physical activity within the sickle cell community in Mississippi.”

Karlson’s “why” surrounding her work is to promote better health through exercise and physical activity for this at-risk population. Serving a patient population that has been historically underserved by both the medical and research communities is central to this study.

Ultimately, the research aims to educate the health care system, policymakers, community, and patients regarding the risks related to overweight/obesity. Knowing and sharing the benefits of safe exercise in individuals with SCD can greatly contribute to reducing health disparities in this vulnerable population.

Birmingham Promise interns work with Forge AHEAD Center for the Spring semester

Forge AHEAD Center is proud to host two interns from the Birmingham Promise for a 2024 Spring semester internship, which began on Jan. 22.

Mariah Beamon and Jermya Norris are seniors enrolled at a Birmingham City School. Each has a passionate goal of making a difference in medicine and science after graduation. Interning with Forge AHEAD Center offers the students support, experience, and early preparation for their respective fields.

A promise to youth in Birmingham, Alabama

The Birmingham Promise program provides up to four years of tuition assistance for graduates of Birmingham City Schools to attend any public two-year or four-year college or university in Alabama. UAB, the first academic partner of the program, is committed to supporting the Birmingham Promise by facilitating a scholarship for students who are admitted to UAB as first-time, full-time freshmen in the academic year following high school graduation from a Birmingham City School. Announced in 2020, the program has provided $3.4 million in tuition assistance and other support to 800 Birmingham graduates.

A unique aspect of the Birmingham Promise is its internship program that allows Birmingham City Schools seniors to earn $15 an hour while getting job experience and building professional networks.

Paving the way for the future of health care

Mariah and Jermya spend their internship hours on UAB’s campus several days per week. Each says their time with Forge AHEAD Center has helped build connections and learn about research faculty and staff’s education and work. So far, they have met with Kristen Allen Watts, Ph.D., assistant professor in the UAB Heersink School of Medicine Division of Preventive Medicine, and Samantha Hill, M.D., assistant professor in the Department of Pediatrics at Emory University’s School of Medicine, to discuss career trajectories and experiences.

Both seniors have internship projects dedicated to a topic surrounding health disparities. Mariah, who attends Ramsay IB High School, is focused on a project that researches maternal health and mortality rates in the Deep South. She is pursuing a career in OB/GYN.

Jermya’s project focuses on researching HIV prevention in adolescent populations. During her internship, she met with an HIV researcher and learned about PrEP. A George Washington High School student, she wants to pursue a nursing career.

During the internship, professional development sessions have covered seven core competencies, focusing on aligning passions with future goals. They have spent time aligning their passions with their future goals. They worked with former Community Engagement Core Program Director Adrianne Marbury to create systems that organize their to-do list using the GTD methodology.

The Spring internship lasts until April 19. Forge AHEAD Center, in partnership with the Birmingham Promise Program, is committed to ensuring a positive internship experience to inspire students to pursue careers in public health and contribute to their hometown community.

Get to know our new communications specialist

Forge AHEAD Center is proud to announce Chris Campos has joined the Forge AHEAD Center team as communications specialist.

Campos role is based on UAB’s campus. Prior to his new role, Campos worked at Legacy Prep Charter School in Birmingham where he managed district technology and communications, focusing on student recruitment and data management. Prior to that, he worked for Clarksdale Collegiate Public Charter School in Clarksdale, Mississippi.

“My roles at Legacy Prep Charter School and Clarksdale Collegiate Public Charter School were pivotal in developing my expertise in brand promotion, strategic planning, and community outreach, enriched further by my skills in graphic design and data analysis to support marketing campaigns and organizational growth,” Campos says.

Campos says he enjoys the many complexities of communications work. From disseminating a groundbreaking initiative, explaining a complex solution, or making information accessible, “the success of these endeavors hinges on effective communication.”

“What I love most about working in communications is the fundamental role it plays in bridging connections between people and the resources or information they need.”

In the realm of health equity, Campos believes effective communication is essential. “It’s about ensuring that vital health information and services reach those who need them most, without barriers,” he says.

“To me, communications is not just about transmitting messages; it’s about fostering understanding, facilitating access, and ultimately, knitting together the fabric of a community by ensuring everyone is informed, involved, and empowered.”

When asked why working in health equity is meaningful to him personally, Campos replies: “Working in health equity is profoundly important and meaningful to me because it aligns with my lifelong commitment to serving the public and engaging in work that makes a tangible impact on communities. My background in non-profit settings, the public utility industry, and public education has instilled a deep appreciation for initiatives that strive for equity and access for all, particularly among underserved populations.”

Campos says the industry transition from public education to the health equity and research represents a natural extension of his desire to advocate for fairness, leveraging his experiences and growing knowledge in public health to contribute to the critical task of addressing and reducing health disparities.

“This role not only resonates with my values, Campos says, “but also offers a compelling opportunity to apply my skills in new ways, supporting efforts that ensure everyone, regardless of their background, has equal access to healthcare services and the opportunity to lead healthy lives.”

Campos, who’s native to Texas but lived in Georgia, South Carolina, and Alabama, says his roots run deep in the South. “I love to spend time with my wife and two-year-old son. Being a father is one of the most life-giving things I’ve ever experienced. Also, I am a distance runner and involved locally with the Birmingham Track Club. I ran my first marathon last Fall and already planning for the next. I love coffee (I’m one of those that does a pour over every morning) and spending time outside.”

We are glad to have Chris on board and welcome him whole-heartedly to the team.

Community Advisory Board member spotlight: Brooke Floyd

Since January 2022, Brooke Floyd has served as a Forge AHEAD Center Community Advisory Board member, representing Jackson, Mississippi. For over 20 years, Brooke has worked in the Jackson community ensuring children are able to receive a quality education and the support they need to be successful.

Brooke is director of the JXN People’s Assembly, a program in the People’s Advocacy Institute, where she engages the community through education on issues, providing access to information and resources, facilitating People’s Assemblies, and helping the community bring proposed solutions to elected officials.

“Through People’s Assemblies true change is possible, for our communities, giving our children a fighting chance,” Brooke says.

The Forge AHEAD Center communications team sat down with Brooke to get to know her and better understand her role as a Community Advisory Board member.

Q: Tell us about your background and current work.

I worked in children’s education for over 20 years. I taught elementary school, HeadStart, and directed a children’s program at a local non-profit in Jackson called Stewpot Community Services. The program provided a free after school and summer camp for children in Jackson.

Currently, I am the Director of JXN People’s Assembly Initiatives which is a part of People’s Advocacy Institute. JXN People’s Assembly aims to increase community access to information, to government, and to increase community engagement and voice in government decisions. We hold People’s Assemblies with community to provide residents a space to receive information, discuss the issues relevant to them, and to develop solutions to solve the issues. The solutions can then be made into programs (almost all of People’s Advocacy Institute’s programs were developed through People’s Assemblies) or if needed taken to the appropriate government level to try and be made into policy.

Q: How does your work with the People’s Advocacy Institute and Stewpot align with the work of Forge AHEAD Center?

I think all three are working to help alleviate the gap between those that have and those that don’t. People’s Advocacy Institute aims to create a more just society by building community capacity and governing power through helping those who are often most harmed by an unjust system. Stewpot cares for people by providing their most basic needs, food, clothing, housing, and most importantly love.

The Forge AHEAD Center focuses on the health disparities all the groups of people PAI and Stewpot work with and provide services for. We may be in different subsets, but we are part of a much larger purpose, to help people in our area that are constantly left out of the equation. We all want to ensure that everyone is able to not only live but thrive.

Q: What excites you most about working with Forge AHEAD Center?

I love learning about the research and the potential outcomes. I am excited to see what can happen, when the right people, minds, and resources work together for the greater good.

Q: What are some of your goals within the Jackson, MS community for 2024?

There are several issues I am working on, but one main goal is to have a public water system that includes community input and supplies Jackson residents with clean drinking water.

I am also looking forward to our Youth Action Initiative which will help to train young people around the issues that are important to them and get them involved in the electoral process. Of course, I always have the goal of engaging more Jackson residents, keeping them informed and helping them to become part of the electoral process.

Community Coalition spotlight: Seven Star Academy

Seven Star Academy, Inc. a non-profit organization located in New Orleans, Louisana, is a Forge AHEAD Center Community Coalition partner.

Founded in 2018, Seven Star Academy, Inc. aims to increase the health and wellness of local communities through health literacy and education, participation in research, and healthy program enrollment.

Nelson Lemieux is the executive director of Seven Star Academy, Inc. and says that the partnership between Forge AHEAD Center and Seven Star Academy will ultimately increase the impact of their efforts. He and Dr. KiTani Lemieux, who is also a Forge AHEAD Center Community Advisory Board member, direct and manage Seven Star Academy, Inc.

Health literacy as an avenue for justice

“Seven Star Academy, Inc. works with partners that are like-minded in their missions,” says Nelson Lemieux. “Forge AHEAD is committed to improving health equity in the Deep South. Seven Star Academy is committed to addressing health disparities with a social justice lens.”

Lemieux explains that Seven Star Academy, Inc. diligently seeks like-minded organizations to partner with, and they seek social justice through health equity for those who are underrepresented in the biomedical community.

They engage underrepresented communities in science and research by enrolling participants in the All of Us Research Program, offering educational events on research participation, hosting vaccine awareness events, and more.

“Our grassroots approach in providing health literacy information and education has heightened awareness for wellness in the communities that we serve,” says Lemieux.

Looking towards the future

Increasing Seven Star Academy’s visibility and expanding reach with additional resources for community education efforts is essential to the organization.

Both Seven Star Academy, Inc. and Forge AHEAD Center are excited about the shared community partnerships. “We want to be a part of a community-driven solution that is sustainable,” Lemieux says.

Visit their Facebook page for more information.